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For the sake of the archival of Jack’s journey, I thought I’d wipe the cyber dust off the ole’ blog to update Jack’s story. Hopefully this helps those of you on the same journey as us feel more prepared or informed (I put some tips in!), helps our friends understand more about Jack, and of course records his story should he every want to read it.

Jack (Jackie, Jack Jack, Jackers), now 7 years old, still looks like his cute, dimple faced self. I really doubt we’ll ever need to do a nose or lip revision–which is pretty incredible! However, this whole cleft thing is not just about aesthetics, but is just as much (or more) involved in the hearing, speech, and dental arena. Through his  school, Jack has continued having speech therapy once a week.  He’s had wonderful SLP’s that have faithfully met with him and pushed him to be as articulate has he can be. Those speech sessions, however long and numerous are worth it! {Tip for my fellow cleft mamas: Observe those speech sessions–practicing at home is where their success is made–integrate it into your daily conversations. I’ve learned to sneak in speech practice with his reading time–he doesn’t even know he’s getting the extra speech practice.}  His articulation skills have progressed wonderfully and Jack has also grown into a more confident little(ish) guy. T-tubes have allowed his hearing levels to remain satisfactory as well! {Also, Jack’s a super quick soccer player, lover of anything competitive, and a homebody that  enjoys snuggling in with a good book, legos, ipad games, or laughing hysterically with his siblings <3.}

One thing that has not improved with Jack’s speech is the amount of air flow that comes out of his nose when he speaks (nasal air emission). Because speech therapy hasn’t permanently helped this, it was deducted that it was a physical structure issue. Jack recently had a nasal scope performed at Doernbecher to determine the issue.  During the scope he participated in a speech therapy session {can we say, Rock star?}. My gag reflex was going off and I didn’t even have anything in my nose/throat! The camera showed air bubbles escaping in his throat when he speaks; we also got a peek at his epiglottis and voice box–SO cool. {Additional tip: Preparing kids for appointments is key–give a brief overview of what the appointment will be like, rehearse how to react (take deep breaths, stay calm, hold my hand etc), and state what reward lies at the end of said procedure all helps a TON! A fun sleep mask  takes the edge off an object coming towards ones face–we use this in dental procedures too, with headphones/fun music. Jacks song of choice here: “This is my Fight Song” ha!}

The results: Jack’s next surgery–the extension of his palate; the hope is that less air will escape when he speaks. Essentially, the soft palate will be “Z” cut and pushed back. Basically, Jack grew, so the palate that was made for him when he was a baby isn’t long enough. We are excited that this will help him, but also sad that he has to have this extra surgery; he is coming up on his gum line bone graft surgery, so it’s not ideal to us for him to have such major things close together. However, because we found out our amazing surgeon, Dr. Kuang, is leaving, we are super thankful she gets to do this surgery for Jack before her departure.

I am reminded again that there is joy and opportunity in suffering.We absolutely covet your prayers for Jack on March 7th! We know this is the sovereign path that we were placed on and are praying  to rest fully in peace, knowing that God has Jack, and for Gospel opportunity and growth in our family’s life. Will you join us?

Jack most dreads the point of separation from us on surgery day. Please pray for peace in his little heart. Pray for safety, zero infection and that the size on the palate will be perfect, as there is the risk of redoing the surgery if it is not. Pray that we can find yummy things for him to drink during his 6 week recovery. Pray!

Thank you to all that have followed Jack’s story, have prayed for him and love him like we do!! We are excited that he has the opportunity for clear articulation with less effort. Go, Jack!

Spring breeds new growth everywhere we turn! Over Easter we visited Whidbey Island and Anthony’s wonderful parents. A few sunny days (and the hot date we squeezed in) made it pretty much the perfect weekend. Driving by some newly birthed spring calves, the kids and I ooo’d and awe’d over them. Anthony said “Yum, look at those baby steaks!” Perspective. I think our kids decided to join in the season and sprout as well. This is a quite a positive element considering they each have a bit of a vertical challenge!

Allie Girl, {a spring filly}, lanky legs race around, conquers new feats on her birthday roller blades. At first wobbly, arms spread wide, flailing for balance…now more smooth and comfortingly cautious.  God truly granted us this cautious, wise beyond her years girly girl, before blessing us with THE boys.  About to wrap up her first year in school, she has blossomed into a studious student who loves learning as much as all the playmates she’s developed friendships with at school. Her first few baby teeth have disappeared as we get to become seasoned tooth fairies. I am loving all the jump rope rhymes and hand clapping rhythms being 7 brings…a whiff of childhoods gone by.

Jackie Boy, {budding conversationalist}, recent newbie gum chewer, chatters my ear off as we travel about our days. Full sentences compose most of his vocabulary now, no minor miracle. We work on the randomly mispronounced words and add in our articles “a, and, the.”  Teacher Linda and Teacher Emily are the wonderful women he looks forward to speaking with each week, as they take him closer and closer to normal speech patterns. A recent cleft check revealed failed ear tubes, but the hearing test showed close to normal responses. We shall wait out this season to see if new tubes will be necessary. Big brother now defines Jack’s everyday as he lets Max invade his action figure world and helps alert us to the mishaps Max tries to get himself into.

Maddox, {adrenaline junky}, sippy cup tucked firmly beneath his arm, truly needs his life saved every. day. From climbing, jumping, ingesting, experimenting…this boy has it out for himself.  Max seemed to sprout from mini-baby to full on toddler overnight. Throwing balls (and other objects) far, sliding down the stairs quick as lightening, he has no problem keeping up with his older siblings. The only thing lagging behind now is his teeth…molars begging to erupt…but taking their sweet time. Doing the Hokey Pokey and playing with his little cars are favorite daytime moments for Max. From unique sound effects (aaaa–daaaaa being his trademark word), twinkling eyes, and crazy stunts, this guy keeps us all laughing (me sometimes crying) and on our toes. We treasure the few times a day he allows a warm snuggle or offers up a puckering kiss.

New growth also aptly describes the parents of these sweet kids. I’ve gotten to trot around a few races with Auntie Lolo (Laura)–growing endurance! Anthony has graduated to having his very own car. Initially I felt this was painful as I would miss the time as a family driving EVERYWHERE together. Then I saw the light. Two cars = awesomeness. There are growing pains as we strive to live out what it means to walk in obedience to God. To put Jesus first every day, to edify the body, to transform to look more  like Him than ourselves, to walk by faith, to share Him with others. Growth sometimes has aches, but yields lessons learned, maturity, and joy.

                Here’s to more sun than rain as we near lazy summer days!

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Convincing a 16 month old that the pantry isn’t a great hiding place for a sippy cup, filled with milk—considering the lack of fridgeration and all.  Drying off an adventurous 3 year old after his “shower” under the gutter spout.  Sorting out teeny tiny barbie shoes from dress up clothes and zoobles.  Action figures intermixed with clean laundry  silently begging to be folded.  A webinar at 10 AM to hone my teaching skills.  Poopy diaper.  I’ll look back someday and wish Batman was falling out of folded laundry and that soured milk is in my pantry….right?  Maybe not. At least I’ll wish that I have these rosy chubby cheeks to kiss and little voices calling “mommy!”  Reminding myself, Today is my someday.  Kissing some cheeks…and bellies….and toes.

Our mini-theologian, aka JACK PEREZ, is insistent as he learned more about the true meaning of Christmas, that we refer to baby Jesus as Baby God. Going as far as changing the words to songs, he’s serious about telling us that Jesus is God! As Allie crooned the words to “Happy Birthday Jesus, I’m so glad it’s Christmas,” Jack chimed in with his own version, “Happy Birthday baby Go–od.”  At the end of the day, he is right on. Jesus is God, and that is really what this Christmas is all about!  David and Goliath is another fav right now…especially the throwing rocks part.  Recently Jack has memorized a few verses as well. I’d say speech therapy is working. Jack meets with his new speech therapist once a week in our home.  Although assigned to us through our local school district, she did much of her training with Jack’s cleft team at Doernbecher. Coincedence?  I think not!

ALLIE crooned many other tunes this season as she participated in her first two Christmas programs via church and school.  It’s so strange to be the parents in the audience…weren’t we the ones just a bit ago standing in those choir lofts?  I’m not biased or anything, but our baby girl sure was fabulous in her sparkly Christmas dress from Papa, her dark hair flipped just so.  “Hark the Harold Angels Sing” was her favorite song of the season in addition to the dramatic bow that the choir did at the end of the program.

Baby MAX (in my totally honest opinion, is one super cute baby) has been taking steps for a few months when in response to our constant coercing.  This changed, however, this month as he decided walking was his best mode of transportation.  It’s so strange to see our little guy standing, carrying things around rather proudly.  This proud walking is quickly turning into more of a jogging action.  Max is a quick little guy that enjoys many mischievous moments (like jumping off stuff), keeping us on our toes!!

AP, along with continuing to be the best dad and hubs eva’, is also off galavanting in Vegas with Leatherman. Evidently launching new products is pretty important stuff.  He has had the awesome opportunity to become quite the photographer/videographer for them.  The photo ops have included local firefighters, swat guys, alligators and boars, and our cool friends….Amazing man. Enjoy some of his best photos below…our kiddos 🙂

Wishing you all a Happy New Year!!

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Perhaps it’s the fleeting hours spent with my aging grandparents–almost 92 and 97, or maybe the long hours of podcasting with my thinker husband, but this road trip has got me thinking.  As I sit passenger side, the  road seemed to unfurl, an endless ribbon before us (toy story 3 serenades in the background, 3 crusty noses sit, buckled).  Long, sleek, winding, turning, rolling up and down.  At times fields flank us, seemingly never ending, full of emerald. A baby calf lopes after his mama, a windmill rotates lazily in the breeze.  Along other points of the ribbon,  the terrain morphs into towering rock inclines–majestic, yet looming, casting their shadows on the road.

LIFE. Mine a mere 30 somethingish years long, Grandma’s broaching on 97 years, and my kiddos–so young.

Many life points consist of joy, pounding powerfully like Palouse falls, rainbows of blessing weaving and shimmering their way through the water.  Others, intersections and valleys, appear dark, unclear. Ups and downs. Turns. Valleys, straightaways, and mountaintops, each taking their time on the ribbon.

Truth: God is Creator. Sovereign. LOVE. I desire to live fully and worthily in the valleys and the peaks because God’s presence is there. In the shadiest valley, His face shines so brightly that I have to hide mine in a cleft of THE rock (Voskamp); as I emerge out of the valley, I see the footprints of his glory–evidence he WAS there.  Seriously, as I take a quick scan of “Lisa’s life valleys,” His footprint is there!  On the mountaintop the joy is easier, fully naked for all to see.   You know, graduations (go Daniel!), the birth of kids, fun trips, job promotions, retirement (Yay Dad!), a good prognosis, answered prayer, etc.  In both places there should not be fear, but joy (Chan). Joy in knowing He KNOWS. He PLANS.  My Planner. Am I  ready to plunge joyfully, fearlessly into future dark valleys, live fully in the straightaways, and to summit the peaks–to live intentionally on this ribbon of life?  As my belly continuous to process the copious amounts of sushi consumed in the last 3 days, my heart is hopeful and prayerful towards my future ribbon.

Exodous 33:22  “and while my glory passes by I will put you in a cleft of the rock, and I will cover you with my hand until I have passed by.”(ESV)    Psalm 23:4a  “Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me;”  Psalm 37:23  “The steps of a man are established by the LORD when he delights in his way;” (ESV)

Chan, Francis. “Fearless.”  Reality Church, 29 August 2010.
Voskamp, Ann.  One Thousand Gifts. Grand Rapids, MI: Zondervan, 2010.

Jack’s hearing!

Jack’s recent ear tube surgery came off without a hitch.  The drugs and anesthetics did make him more crazy than normal, but once that wore off, he was unphased.  Two weeks later he passed his hearing test with perfect scores. We can already hear a difference in his speech and are excited for him to have some intense speech sessions this summer.

Allie’s graduating!

From kindergarten that is.  She has been promised her first trip to Oaks Park upon completion of her school work. She is busily and carefully printing her last pages of handwriting, math, and language. We recently made the decision to enroll her in 1st grade for the coming school year (sob).  With that comes the end of her blooming gymnastics skills.  I only wish I could have such a sweet attitude when life hands me disappointment as she did when we told her that it was time to be done with her team. We’re excited to see her jump into her next endeavor–1st grade!

Max can see!

Anthony surprised me while home alone with the kiddos. I came home to Maddox sporting a new, much shorter hair do.  Much needed for sure, but sad too. Additionally, he is a little steam roller–by flipping his chubbiness over and over, he can pretty much get anywhere he feels he needs to be.  Our baby is growing up!

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As SNOW blew into our yard this week, the random flurries reminded me of my own life of late.  Flurries of family activity have blown our way since October!  This is what I shall claim as my excuse to the lack of blog posts and missing pics of the Perez kiddos. (not lack of motivation or laziness–NEVER! ha!)

Sadly, my Grandma Elder passed away in October.  So, we ventured on our first road trip with new Maddox in tow.  He did great, and despite the circumstances, it was fun to introduce him to his extended family.  We sure will miss Grandma’s wit, charm, wisdom, and endless talent.  Rather surprisingly, it seems like Maddox has inherited her lovely blue eyes.  We shall see if he keeps them!

Link to Grandma’s life info:  http://www.kayserschapel.com/visitations/View.php?id=534

The November winds blew in my fabulous brother Steve, Miwa, and baby Isamu AND  friends, the Linns, to enjoy the Thanksgiving holiday–along with my parents, Laura, and Kyle.  Seeing Isamu toddle around with our kids was great–can’t wait to see him again!  With the Linns, we even braved the Black Friday crowds (ahem–KHOL”S–ever been there on Black Friday? CRAZY!) together–with Maddox–he’s quite the adventurous baby!  Steve spoiled Anthony and Matt with a trip to a Ducks game. They were pretty exhausted after shopping AND football.

The Great Wolf Lodge was calling our name in early December. What a FUN place!  We were able to completely surprise our kids and boy did they love it. Allie even braved the big slides…there may have been some bribery involved.  My only regret is that it wasn’t ME sliding down the big ones, but I suppose Jack and Maddox do need some supervision.  Can’t wait to go back!

And then there was Christmas.  We had plans. Upon PLANS.12 days of coffee and Anthony’s entire family coming over for a week of activities and memory making fun. But, alas, we ended up packing up and spending some time at the Coachman Inn on Whidbey Island where Nana and Papa live.  Nana was unexpectedly hospitalized for an entire week.  We were all thrilled to welcome her home on Christmas Eve.  At the end of the day, or week, memories were still made and we were all that much more thankful for our Nana!  The second week of the break, we were able to entertain parts of Anthony’s family in our home.

THEN  January.  No plans. Until Papa was hospitalized for a week!  We got re-aquainted with their small town–I even tried to convince Anthony that I was really enjoying small town living. Despite the craziness of being there again, I must say that I loved learning more about my husband.  We re-explored some childhood haunts of his as he shared many a fun memory.  Additionally we were able to spend more time with his GREAT sisters.  I’m so thrilled my kids were able to bond with Auntie Tina (or Nina as Jack says) and Auntie Siony.  Priceless.  Every day since, Jack says with regret in his voice, “Nina Bye, Bye?”  Papa did have to get a toe amputated, but is doing well now–thankfully!  Here’s to good health for the rest of 2011!

Perez Kidz

Allie–is ALMOST 6–nooooo!  As I’ve home schooled her this year, I’ve had the opportunity to see her joy of learning and see the basic things from new eyes.

Allie: What is MLK day about anyway? Me: Well, Martin Luther King was a black man that wanted…Allie: WHAT? He was totally black? Me: Just really dark brown. Like Oprah. After further explanation, Allie: Soooo, he wanted to be nice to all people just like I am nice to my brothers even though they are a different color than me. Me: ummmm yeah. Additionally she stated that we need to treat people that look like Ellen nice too.

Me:  Let’s review.  How old does one have to be in order to be President?  Allie: 35.  Me:  So could Jack be President?  Allie: no–he’s too young! Me: How about Papa? Allie:  long pause.  Me:  Don’t you think he’s older than 35?  Allie:  Well, yeah, but I’m pretty sure he wouldn’t know how! (And I cringe that this year , I too will be eligible to be President…age wise anyway!)

Another Social Studies lesson brought us to the idea of dreams and what we would dream for others in the world.  I of course tried to steer the conversation towards things like the Gospel being shared, food and shelter for all, peace…etc.  We ended with Allie stating her dream for all kids:  My dream for all kids is that the whole world would be made of jello so we could just BOUNCE all around.

Ok ok–last one:

Allie: If you give a pig an apple, he’ll give you bacon. Me: Oh really–HOW?

Allie: He toots it out.

Jack Jack: is pretty much hilarious. This is good, considering he is TWO and has the occasional (daily) emotional moment.  He somehow knows how to contort his face at any given moment to make us laugh.  His laugh continues to be contagious and  we can’t help but smile as he attempts to put more than 1 word together now.   He’s become rather obsessed with his batman figurine– Hilarious.  Batman is constantly fighting something or being shot down by a Nerf gun.  Jack’ers is a big fan of his big sister–attempting to mimic pretty much anything she does or says.  He continues to see a speech therapist once a week and we are looking into private speech for the coming months. So far Doernbecher has said that he can continue to develop, so no surgeries are on the horizon. Yay!!

Maddox: Chill. GOOD. Adorable.  Has rough nights. 5 months. 😦  Adores his siblings who return the favor.  Allie is my little mommy–holding him constantly. Jack’s favorite thing to do is lie next to him–sometimes piling batman figurines on top of him.  Maddox just mastered our jump-a-roo–his head bobs to the beat of his CHUBBY feet dancing around.

As the flurries of life have come, I must say some days I have felt overwhelmingly overwhelmed and incapable. But, even now as I step into a calmer period, I can see how blessed we’ve been.

The Linns introduced this song to us at Thanksgiving–so great!

“I have been blessed. God’s so good to me. Precious are His thoughts of you and me. No way I can count them, there’s not enough time, so I’ll just thank Him for being so kind. God has been good, so good.

I have been blessed.

 

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The Perez family is proud to introduce the newest member of their clan: Maddox Kai Perez! He was born on Friday, September 10th, 2010. Other stats include: born @ 8:03 am, 7 lbs 2 oz., 19″ long and incredibly handsome. Both Lisa and Maddox are doing great and getting tons of rest. Really big props to Mt. Hood Medical, Dr. Knudsen and her staff for an excellent delivery and recovery.

More info in the days to follow; but for now, some darn cute pics will have to suffice. 🙂

TESTOSTERINE!  Yep, our 20 week ultra-sound showed some Perez boy power going on.  More importantly, 144 sweet heartbeats per minute, two, arms, two legs, crazy busy hands, and seemingly perfect health so far.

Sigh. Relief.

Joy. Excitement.

Fear. What exactly can two little boys accomplish together?

We can’t wait to kiss some more baby chubs–come on September!  Well, first, I have some shopping to do!

Easter…

brought us to beautiful Whidbey Island where Nana and Papa live.  We enjoyed some bowling action on the base…and some pretty sweet fries and queso.  Allie and Jacker’s scavenged for Easter eggs at a local hunt.  Jack was in awe of the Easter Bunny–couldn’t stop waving, yet screamed quite shrilly whenever he approached us.  Allie surprisingly took a pic with the furry guy–she’s growing up!  Easter Sunday we were able to celebrate with Nana and Papa Christ’s resurrection and all He’s done for us.

Spring Fun

Anthony cruised around in Vail for a few days–thanks, Leatherman! Jack’s at the super-explorer age, so things like the Children’s Museum, parks, books, crayons (yikes!!)  and our kitchen cupboards have been keeping him pretty busy.  Allie continues to cartwheel her way toward kindergarten. This next month she’ll get to have 3 hours a week instead of 45 min. in the gym.  Her love of reading has exploded and we are going through library books like mad women–LOVE it!

The Perez’s are enjoying the spring showers Oregon brings, but we are anticipating some summer fun that is just around the corner!

Love to All!

Full House…

Allie and Jack were the recipients of a sweet valentine card.  We addressed it to them and signed it from their NEW baby brother or sister.  Allie is quite excited about this new addition and convinced it will be a girl.  Jack on the other hand seemed rather oblivious…Come September, he may have stronger feelings about his new sibling.

We are excited and feel extremely blessed…and nauseous…well at least I am.  Sprite is my new BFF.  The other day, as I was snuggling Jack’ers before he slipped into dreamland, my heart was filled with gratitude at the opportunity to snuggle another sweet little Perez for the next few years of babyhood.  Life is good.

Baaa Baaa Baaa…

Jack just had  a nice visit with some of his friends up at Doernbecher.  Our speech therapist has us attempting to get Jack to say the consonants B and P.  We are getting very creative with how many words can actually have those letters emphasized.  For example, naturally we want to say “oh no!” if something drops.  Now we say “Boom! Baa baaa baaa boom!”  Or when reading, horse is “Pony…paa paa paa Pony!”  You get the idea.  We have to stop ourselves when we start doing it to each other. 😉

The good news is that NO fistula has developed!  He can now suck through a straw!  So, assuming we can get his speech on track, we shouldn’t be seeing surgery for a few years.  Yeah!  We also saw some dr.’s from the Casey Eye Institute.  After a lengthy evaluation, they feel that Jack is far sighted. He will get re-checked in 6 months.  So, our prayer is that his eyes will improve before that check.

Jack’s biggest accomplishment of the last few weeks–Walking!  He is now officially getting into everything.  Fortunately he has a big sis that helps us keep tabs on his sneaky-ness.

Allie’s dream….

Little Allie girl has been wanting to turn 5 for a very long time. Her wish is about to come true next week.  It’s very surreal to have our baby girl becoming such a mature little girl.  She assured me I would still get daily hugs and kisses…so I guess we’ll survive her turning such a ripe old age.

Flipping, cartwheeling, bridges, and handstands have become Allie’s passion of late.  She has really taken to her weekly gymnastics class. Seeing her confidence and coordination grow has been fun for us!    She also continues to love her at home activities of reading  and riding her bike or  scooter around Gresham.

Family

Last week we were able to travel to see my family in Spokane. It was so fun to have us all together for a few days. We were finally able to meet our new nephew, Isamu. What a beautiful baby!  It’s amazing to be able to visit with my 90+ year old grandparents.

Jack had his post-op about a week and a half ago.  The outlook?

No fistula so far * Hearing as low as 10 decibels (was only at 30 before)! * No No’s are off as of last Wen.! * Soft foods for just one more week!

The light now glimmers brightly at the end of this leg of our journey.

Jack is back to being Jack.

Sleep is back.

Appointments are gone until Feb.

and…

Christmas is here!!

We are looking forward to worshiping our Savior and spending some fun, quality family time!  We wish the same for all of you!!  Merry Christmas!

Really? August already? So much for the grand ideas of hitting the gym everyday this summer, or getting those home repairs done in July. Well, we can scratch one task off the to-do list. Blog update!

The family had quite the busy month of July. We started out with a bang—visited our dear friends Matt & Alisha in Kalispell, Mt. for the 4th of July. If I had the opportunity of owning a vacation home, Kalispell/Whitefish area would definitely be in the running. Did some mt. biking, volleyball, saw the BEST home fireworks show ever and got to reconnect with some great folks. Before we went to Kalispell, we stopped in Spokane to see Lisa’s grandparents. It was the first time they got to see Jack in person. I always love visiting there…it’s not every day that you get to hang out with a very energetic 90 yr. old man and his 94 yr. old bride.

Our weekdays/weekends consisted of a ton of swimming at the pool and the occasional bike ride on the Spring Water Trail. Allie is really getting the swimming thing down. Making some good kicking movements, and even held her breath underwater for 7 seconds. She probably won’t be the next Michael Phelps, but she’s progressing. As for Jack, he could be the next Phelps, as well as the world’s best pool-drinker-guy. That kid loves to put his face in the water. We also did a hike up to the top of Multnomah Falls. First big hike for Allie and Jack. Allie did extremely well, and Jack stayed buckled in the whole time.

Next was a camping trip to Wa. and then a quick stop at Cannon Beach. It was great to spend time in the middle of nowhere, zip-lining through the woods, then catching a beautiful Oregon Coast sunset. Special thanks to the Sorensen’s for hosting us at the cool logging camp site, as well as the Adam’s for the hospitality at Cannon Beach.

Finally wrapped up July with a trip to the Nikkei Legacy Center in downtown Portland. It was amazing to read about the stories of the Japanese Americans (Nikkei) in Portland during WW2 and the detention camps. We even got to see a family friend’s name in a roster for the Expo center holding area. She and her family lost everything and then were placed in the Minidoka camp in Idaho.

Jack’s been doing pretty good with his mobility and sounds. He’s got the scooting-thing down, now on to crawling. For sounds, he’s got mama/baba down and is working on “N” and “H” sounds. Overall, making some progress with the speech, but we still have a ways to go. He’s also eating solids really well. We do get the occasional food up the nasal cavity and he doesn’t like that too much. In a few months he won’t have to worry about that; the palate surgery will be here before we know it!

Overall, we’re doing well and very grateful for all God has given us. How can we not praise Him for His goodness, mercy and grace?